She was just over 6 months and her weight was 2.9 kg. Her mother is a teenager. She was severe malnourished and she was admitted in the hospital, by that time. The hospital asked us to take over from the mother, because the mother was depressed and frustrated. Our social workers went to talk with the family, the mother and the grandparents and we offered to help the mother to go back to school. She was suppose to go to P7, the exam class of the primary school, a very important year. Amecet would care for the baby and the mother would sit for her exams. Then later the family would take the baby back to their home....That was the plan..... But things went different, when Martha came she was fed by NG tube, she had difficulties with swallowing. We went to the pediatrician, we tried to feed her by mouth, but we didn't came much further. Slowly Martha started to gain, she started to use her hands to grasp things, she started to respond to different people, smiling, but still she had to be fed by NG tube and was still small and floppy, for example, she can scratch her nose with her toes, very elastic... Then one of the doctors in Soroti referred us to Kampala, to a neurologist/pediatrician. we organized the trip to Kampala, together with 2 other children. The doctor in Kampala thought that it was a chromosome disorder where she is born with. They took blood samples for tests and we went back to Soroti. 2 weeks later we got the results: it is confirmed that Martha has a rare chromosome disorder : Trisomy 9. We have searched the web and got several websites with information about this disease. You can't do much about it, they can grow over some things, but there is a big different, when you are born in the West instead of in a small village in Africa. The diagnosis gave a lot of answers. But right now we are struggling with the blood sugar of Martha. She had high fevers last week and probably an infection which affect her kidneys. There is sugar in her urine and she goes up and down with her blood sugar. It all relates to the Trisomy 9.
Please pray for Martha, that the blood sugar will stabilize and the sugar will not come out in the urine. Pray for wisdom, we soon have to take decisions about Martha, but her home situation is not stable at all.
Oh my little girl. She is on my laptop screen. I'll pray for you, little girlReplyDelete
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