Yesterday: Deborah (our nurse) and I took George to get a biopsy. George gets his ARV's via an other organization than most of our children. We have been calling them and we could come yesterday to have that biopsy done. They took it in the hospital, in the same building as where the theatre is. This biopsy will be sent to Kampala. they want to confirm their diagnosis, a certain cancer, which is more common with HIV+ patients. It was so sad to se him crying and fighting the injections, knowing that there is a long way ahead of him, with many, many more injections....
Today: I took baby Esther for a scan of her abdomen. I wrote about her before, a small cute little girl of 4 months and weighing just over 3 kg!! She still not doing well, vomiting a lot and hardly growing. The doctor who did the scan, saw an obstruction near the place where the stomach goes over in the intestines. We have to go back to the pediatrician, who will send us probably to the surgeon... But as he was talking to us, Esther gave the doctor such a beautiful smile, the biggest I have ever seen of her, I was almost jaleous of him....
Tomorrow: We will leave very early (before 5 am!!!) for Kampala. we have to go to a pediatric neurologist with Benjamin, the baby I wrote about in my last blog. They can also do a EEG there. So Deborah (the nurse) is sleeping in our home, Ben is also sleeping here and tomorrow morning we hope to leave before 5 am.
Everey day: We have real problems with Anna Grace and John Peter, they are refusing to eat. and we are in a real battle with them. They are 13 and 14 years old, HIV+, on the ARV medicines and very, very malnourished. They get angry at us, they go and vomit etc. etc. this goes on every day. they cry, they lie, they throw their food, it is not easy for the staff. They are really in need of help, but they refuse the help we are giving. We ask your prayers for yesterday, today, tomorrow and every day.....
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