Amecet n'ainapakin (Shelter of Peace) is a ministry of Youth With A Mission (YWAM)in Soroti, Uganda. We are reaching out to HIV infected and affected children. We also are caring for new born babies, who lost their mother after the delivery. The third group of children we help, are children who need a safe place, they mostly come via the police. In this blog we want to share with you our stories, our pictures, our needs and blessings!

Thursday, April 10, 2014

Sad news..

Yesterday, janneke and I took Max back to the doctor for review. We are woried about Max. He came in Amecet on Feb. 19. (read the blog of feb 19). He was very weak and the doctor put him on second line ARV's, (stronger meds.) He is eating well and has gained 3 kg. since that time, but we feel that he has gone backwards in his emotions and movements. He is not talking and he can't walk alone, he is very scared and it is hard to get contact with him. The doctor asked us to do a CT scan from his brain. That can't be done in Soroti, so today we drove with Elias to Mbale.
Janneke had installed Max very comfortable on the back seat in our van, he was a bit scared, but he even slept some on the way up.
He was scared to have the scan done, but Janneke stayed with him to talk and to make hime relax. when the scan was done we had to go to another hospital with the scan to the doctor who would interpret the scan and write the report. The doctor looked at it and wanted us to go back to the first hospital to do the scan again, but now with contrast fluid in his veins. So we drove back to the hospital and they gave Max a canulla and we had the scan done again, with the contrast fluid. After the scan, we went again to the doctor who would write the report and after some time we got the report! It was not good, the brains are getting smaller and they think that the HIV/AIDS is the cause of that. All the way we had been scared of this, but you hope that it is maybe TB or Toxoplasmosis or something what can be treated, but now we know.... It is almost like dementia and that in a boy of 11 years old!! It is so sad and we were very quiet on the way back to Soroti.
Back in Soroti we saw the two new baby's who were taken in by Dominique and Esther that day, twins of two days old!!  We have a very full house now!! The good thing is, that they will share the bed!
Steven and Evalyn

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